In a heart-wrenching video uploaded to YouTube in February, Valentina Maureira expressed her desire to meet with Bachelet, saying she was "tired of living" with the incurable illness.
Her father, Fredy Maureira, told reporters that Valentina died yesterday of complications from the genetic disorder, which attacks the lungs and other vital organs, making it difficult to breath and causing a host of other symptoms.
His daughter "did a lot for other dying children" with her message, which was viewed thousands of times on social networks and ignited debate over euthanasia in Chile, where it is forbidden by law, Maureira said.